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Maria_R
#1 Posted : Tuesday, March 23, 2010 8:45:42 PM Quote
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My turn to ask a question...

on the letter from my rheumy to my gp it says that I have RA (surprise surprise!!) and I'm CCP positive. I've never been told that before so could anyone tell me what it means please? I was daft enough to google it- I know i shouldn'tRazz and scared myself earlier today!

Love to you all

Maria
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jenni_b
#2 Posted : Wednesday, March 24, 2010 7:53:49 AM Quote
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it means you are anti ccp positive.

This means you almost 100% certainty you have RA (of course for some there are other diseases present too).

There is a handy article on the main site about tests

http://www.nras.org.uk/a...eumatoid_arthritis.aspx

The Anti CCP is a specialist test. It is much more accurate at detecting RA than the rheumatoid factor (RF) test and if someone suspects RA they should really order both tests, but the anti CCP one is more money apparently. The higher the number of anti CCP the more lairy your RA is on the whole and it is incredibly sensitive and can detect RA BEFORE the first symptoms appear incredibly, up to 14 YEARS before symptoms appear. Amazing huh?!

If you ring the helpline they have further information at NRAS, not on the site.

Jenni x
how to be a velvet bulldoser
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jeanb
#3 Posted : Wednesday, March 24, 2010 9:15:43 AM Quote
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Jenni has said it all!
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Maria_R
#4 Posted : Wednesday, March 24, 2010 10:37:53 AM Quote
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Jenni and Jean- thanks for your replies. V helpful

hope you're both ok

Maria
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lizzie_wa
#5 Posted : Friday, March 26, 2010 5:26:55 PM Quote
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Hi Maria

I am anti CPP positive too, I found out the same way as you - from a letter to my GP from my Rheumy (The Rheumy did the test the first time he saw me). The Rheum didnt tell me he was doing this test, just thought it was a standard blood test, and the result and meaning of it wasnt explained to me either, I found out from NRAS. Jenni has it right in her reply.


lizzie
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Maria_R
#6 Posted : Friday, March 26, 2010 7:36:02 PM Quote
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i Lizzie

I wish I'd been told- I don't like finding things out in such a roundabout way- makes me wonder what else rheumy hasn't told me!
Actually I'm a bit unimpressed with the system at the moment -I was told 2 weeks ago that I was going to start on methotrexate and the clinic would send me an appointment- I'm still waiting. I phoned up and rheumy hadn't even contacted them! Tried again this week -couldn't get through. AAAARghhhh!!

Have a good weekend

Maria x
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lizzie_wa
#7 Posted : Tuesday, March 30, 2010 6:02:09 PM Quote
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Hi Maria

Yes i feel the same, its not nice finding out in a letter without an explanation is it., sounds like we have very similar consultants - I am in the North East. I hope you get your appointment soon for Methotrexate -are you having the injections or tablets


lizzie.
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jenni_b
#8 Posted : Tuesday, March 30, 2010 6:19:05 PM Quote
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i only saw mine at the top of a letter from my consultant once and rang up NRAS to ask about it.

they sent me a load of helpful gumf!

Love

Jenni x
how to be a velvet bulldoser
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